In which the Rodent reluctantly updates.

I recognise the signs. That urgh, don't wanna that says if I drop the blog now, I will never, ever, ever pick it up again and then I'll feel guilty, despite the fact that it's something I do for me and so far as I know there's a maximum of one other reader.

This blog is also where I talk about my migraines and health, an indulgence I don't allow myself as much rein on in Livejournal. This is a depressing blog about a depressing subject so a little urgh is to be expected.

Yesterday was bad. I woke up at 4am and went back to bed at 6am when the painkillers kicked in. Then I was woken up again at 8am, full of migraine. The migraines are a lot better if I am allowed to just sleep them off. Yesterday was another reminder of why I go to bed ridiculously early if I need to get up. I woke up because I got bronchitis which is a good thing, honestly.

If I exercise too much in cold weather, by which I mean to the point where I take in a nice, deep breath of cold air, I get a warning pain in my lungs which will invariably turn into a nice chesty case of sick-sheep-coughing bronchitis. This used to be a real problem when I was a child and a teenager, but it hasn't bothered me since I got ME because I haven't been fit enough to exercise to that level. Well, on Thursday I got my lungs seared climbing up Forest Hill Road in Nottingham carrying a week's clothes and my flute and laptop. This is why I woke up at 4am coughing sadly and unable to breathe well. A cuppa and some sitting up time made all better but it did not make me feel much better when I had to get up and start being active outdoors.

Yesterday I helped my sister move. Despite feeling very, very sick (nauseated) and bronchitic and with a pounding head moving between six and eight all day long, I managed to help my sister. She was upset because her landlord isn't getting basic things like her heating sorted out. I have been in crappy housing before. Her house is decent, but not when it doesn't have heating. I know how easy it is to end up just sitting in despair and when my mum said she'd been crying on the phone at the latest problem (shoddy workmen pulling cupboards apart to put in a fridge that doesn't fit) then I had an idea of what to do. I looked around and grabbed a few pretty things I knew she liked. My mum took her blankets and I greeted her at the door with a cushion she owns that has a very smiley happy yellow cat on. This got a smile.

We were sat in her sitting room all full of bags, lamenting how bad the landlord had been and how awkward it was not to be able to hang anything on any of the walls. It came to me that this was a miserable room but full of nice things and that it didn't have to stay miserable. I then got into bullying mode and spent a happy day mercilessly browbeating my relatives. I made her take all the rubbish outside which was a one-minute job she'd not bothered to do. I got a picture white-takked to a door and the blankets put away instead of dumped on the sofa, and suddenly we were off and the place was being put back together.

She said it was as if she was a junkie and we were running an intervention, because everything we made her do was so obvious and made such a difference but she'd just not been able to work out how to get started doing it.

The meter-cupboards had post and phone books dumped on top and looked depressing, so I made her put the phone books away and she white-takked album covers onto the white doors.

I had to argue with my mum about a fireplace behind the chair that the telly is currently balanced on. She told me not to decorate it because it was a depressing, dusty hole and half-hidden anyway. Now it has a little green dressing table (about eight inches high) my sister picked out, with a potter rabbit on top that sis had had on display in her old room and cheerful matching candles and it's a lovely little background note.

Her computer table has had a vintage scarf fastened to the front to hide all the wiring and I put her monitor-decorations back and cleared the table top but for her tiger-print mouse and pretty speakers.

The meter-cupboards have an album cover, a lot of pink tea-lights in stacks and a coloured tile. Her little tiled coffee table she'd stuffed into the corner is now on display, and the room-heater that was sitting on top of an old suitcase is now on her little table. There's a rug in front of her sofa. I hung up a light shade and covered the non-functional radiator. Suddenly the room is part of a home and not what it was before, which was a place to dump things.

Inspired by this, my sister did her room herself, unpacking everything and putting it all away. The task had seemed overwhelming to her, but we'd got things started and that's the hardest part, usually. When we struggled home at 8pm, it was all just about done.

Going home was awful. Since my sister was nearly done, we ended up staying in a house that was getting colder and colder, while we both got hungrier and hungrier and more and more tired. She did need us and I am glad we stayed, but I was crying with pain on the way home and threw up several times after I got back. I did manage to keep down some cocodamol and by 9pm I was back in the land of the living. It did make me realise how much better I've been recently. I felt so ill, but a few weeks ago that level of pain was normal living. I was also amazed at how well I functioned when in so much pain.

I read recently that slow release opiates should be taken for chronic pain (I mean, if you're going to take opiates at all) and quick-release for top-up. This accords with what I have worked out myself through trial and error, that if I take a single Tramadol in the morning of what looks to be a bad day, and perhaps another in the afternoon or evening, then I can top up with cocodamol and perhaps as a last resort have aspirin as well and I am unlikely to end up unable to cope with the pain.

Last year I was taking Tramadol as a last resort and of course I then needed more and often ended up unable to cope. The current regime suits me very well.

Today I've been out shopping and also spent a very happy time hanging my sister's earrings from a ribbon fastened along the top of a door. My migraine is at about a four after drugging up with tramadol at 4am and cocodamol at tennish. I feel so much better than last night.

In which the Rodent goes for a walk and then does other things instead of going back to bed to recover.

It's been snowing, raining and beginning to blow outside, thankfully after I finished a nice hour-long walk. Bolton Primary Care Trust have come to the conclusion that more people would walk if they had someone to walk with. I filled in the questionnaire last year that helped them to come to this conclusion. The result is a set of Get Active walks, where you turn up at, in this case, a local library and all set off together to tramp around a country park, taking in the sights and keeping up a flow of inconsequential chatter as a nice distraction from the fact you're outside in the freezing cold being weathered upon.

It works. I've spent a full hour, more than, walking around. On my own, I get too tired in ten minutes. I'm looking forward to going and doing it again. This after doing two sessions of tai chi over the weekend (I seriously recommend tai chi) and various running around for a science fiction convention.

Part of the mental discipline is going to be finding something innocuous to talk about while doing it. I've got a leaflet, Zeppelins over Lancashire, from the Bolton museum, so I'll read up and be able to spout off at will with any luck. I'm having a lot of fun gathering local knowledge and putting down roots like a dandelion.

I didn't feel, somehow, that I could share my memories of a fascinating weekend learning how to deal with a Cyberman invasion. Or about the really cool person in the really cool Jack Harkness outfit who got chosen to lead a team on account of being the most smartly dressed (and most hung over and least able to wriggle out of it.) Or the fun of watching a scenario writer seeing her scenario get played out and enjoyed while all goes to happy chaos. Or the mummer in a flame costume collecting money, or the table full of body parts, or the new author hawking his book (Johnny Nexus is his name, I forget the title of his book but I'm enjoying it so far). Or how cool it is to watch someone you know run a panel next to one of their heroes and manage to look as though he does this all the time.

I did share the tale of Pol giving me a lift back to the Travel Lodge and leaving me in the Landrover to go and get something. As he was coming back, the weather suddenly came up, with literally howling winds. There was a crow trying to land in a tree and being blown back, but it managed to get a grip and, once safe, sat watching poor Pol struggling across the car park as about twenty tonnes of hail and rain were dumped upon his head and blown up his nose. I was digging hail out of his ear when he got back. Of course, as soon as he got into the car and closed the door, all the rain and hail stopped.

We went off to get Moth and the traffic was so awful I had to call my flute teacher. She postponed me until 4:30 and I got through the lesson, albeit badly. I've had two doses of cocodamol and I feel not too bad now. Headachey but it's bearable. It's definitely a migraine. I'm not getting the space between migraines I was hoping for but I am functional and I am only taking about 50mg per day, and not even every day.

In which the Rodent has much less trouble getting around.

Suddenly I am fit to go out alone.

Yesterday I failed to get to Rochdale. I missed one train and was too tired out to get another, but the thing is, I looked the train times up myself. I can't articulate why this is so difficult for me when not on strong narcotics, but it is. Yesterday it was simple. This morning, it was simple and I finally got to go.

I didn't just go to Rochdale. I visited the vet there, went to a supermarket and bought everything I wanted to without getting lost or frustrated. I got a taxi to the station and was able to read the signs and make a judgement call as to which train to get home again, finding myself in Manchester Victoria. I did have a small time of being lost, but it resolved fairly quickly and I got myself to Platform 6. It is nice being able to read signs and have them mean something. It's nice to be on a journey and at all times be aware where I am going and why.

Not only did I do all this, but I also had a successful flute lesson. The notes aren't waving lazily around the lines any more, which is making note reading easier. I am still flailing, but that's my own muppetry acting. I can deal with it being muppetry. It just means I need more practice doing sight reading. Ugh.

After the flute lesson I wandered around Bolton town centre. There's a museum and aquarium. Previously, I have spent unfun hours, literally hours, tramping around unable to follow the maps and getting lost. This time it took me about two minutes to work out where it was. Still slow, but I walked straight from the map to the museum and got to see everything and talk about fish care and filters with the two knowledgeable men. One had an enthusiastic air of knowledge, the other had a mop. I ended up suspecting the chap with the mop was probably the senior person there.
I didn't bother with the fake Egyptian artefacts, saving them for another day, but I did get myself a Hall I' Th' Wood mug for £4.75.


No Tramadol (yet) today. Cocodamol at the point where a football being kicked around outside started driving me barmy and I realised I was in pain and probably more cocodamol very soon, but no Tramadol. Tramadol yesterday and Tramadol tomorrow because it's Wednesday and I will have people over. Pain is at about a 5. Annoying but bearable.

In which the Rodent lives the life better stoned.

The first day of Tramadol did not go well, because I slept badly and then got woken up several times an hour and a half apart each time by poor well-meaning Pol. This left me wiped out on Sunday. I got poor-quality sleep in the afternoon and of course stayed awake all night. Then I had to get up to host Ruthi (a person of much, much shininess). My first painkiller of the day was HFCC again, but, on being reminded I have Tramadol as an option, I took one tonight.

The headache's still there but I can think clearly through it and the pain is somehow ignorable. I have no idea why opiates help me the way they do. They clearly do help, but crivvens if I can see why. I'm not addicted to them and every doctor going says they don't help alleviated migraine symptoms, so why do they leave me able to follow thoughts in a straight line?

To give an example, just now before finally dropping off, I've finished the process of getting back on MSN and Skype and I've uploaded my preferred icon, which will end up here when I find out how to do things with pictures. Part of the uploading involved installing an image converter and using it to convert a gif to a bmp. I kept getting it wrong, which is the sort of thing which makes my migraines spike massively, normally. Trying to problem solve and stay on-task like that is very, very hard with a migraine. Just now I have a humdinger but I've still done all that and even remembered to blog before I go to sleep.

The five months of unremitting pain have left me without any fear of the worst migraines can throw at me painwise, so in a good world I won't get into a despair spiral when the headache gets sore. Tramadol being a very effective painkiller, I think I'll notice the pain more when it wears off, an effect I'd seen already with cocodamol. I was convinced that Tramadol had helped me think more clearly back in late 2006/early 2007, during which time I learned a good chunk of Spanish, moved to Seville for several months, found a good (very good) hostel as a temporary measure (Hostel Oasis in Seville is a very, very good place), rented a flat and dealt with flights back to the UK (although I did need help with booking a train). I wasn't happy, and I was too unreliable to be fit to work, but I was functional. Unhappy, in pain but still feeling like a person.

Contrast to my time without, which was spent more or less doing nothing. Forgive the self-pitying tone here, but it was a crappy second half to the year. My social life dwindled because I couldn't stand to see anyone and, worse, can't remember from one conversation to the next what has been discussed. Trying to concentrate to remember is a migraine spike, usually. Not right now, when drugged on Tramadol, but usually. My old skills all fell away and I lost the ability to learn new things. I tried to plan a Solstice meal and couldn't, until I started back on cocodamol.

Magical opiates allow me to think, reason, remember and plan. I can without, but such cognitive efforts are always fragmentary and disordered. I lose the thread of what I am trying to do and the inevitable frustration that engenders causes a small vicious circle of pain until I drop what I was trying to do and go back to lalala butterflies again.

It was a pity that the first day left me an insomniac wreck, but I'll see how it goes from here.
It's 2am, later than I planned on sleeping, but it's still within my definition of 'night' since I am generally a 3am-11am sleeper when healthy. I think I can drop off and even if I don't, there are strict instructions left to let me sleep it out tomorrow so I can get my head straight. Pain is base five, spiking eight.

In which the Rodent writes a much shorter blog post.

Aargh, the last entry was long! I'll keep this one shorter.

I got all upset by the pain clinic's careful dashing of hopes, so slumped into a huge (and migrainous) fit of depression, pain and despair, all of which went to show the relaxation lessons will be very helpful. Meanwhile, I have carte blanche to go back to narcotic pain relief if it keeps me functional. I am also corresponding with the Samaritans by email to help with the despair thing. It saves me having a very miserable blog and upsetting my friends. Whining, but guilt-free! When I no longer end up in tears at the end of each email I'll probably stop considering myself depressed. I think I am coming out of it now anyway.

I rang the London Migraine Clinic and the doc explained (again, alas) that they're not overseeing my pain meds at all, so I also rang the GP and got an appointment for next Friday morning. Go me! The week long wait shows they're busy, so I've written down my case for getting back onto Tramadol. The one change between last year and now is that I will probably mentally be much better able to cope when the painkillers aren't effective, which is going to happen several times per week. The downside to better pain relief is that you notice the pain so much more when it stops. The upside is of course that you are able to actually do things.

Speaking of which, I have some Happy Fun Cocodamol fizzing in a glass next to me which has been sitting there for ten minutes, so I should take my drugs and get back to the written Chinese I have been learning from the basiccharacters Livejournal community. One character per day most days is still slightly hard to keep up with but I am trying hard to. The ten household tasks swallows a lot more of my thinking time than I had guessed.

In which the Rodent has its first visit to a pain clinic.

The ME yuk has faded into the background again. Migraines restrict me so much that I am never quite sure if the lack of fluey ache is because I am in remission, because the beta blockers are a miracle drug for my particular woes, or whether I end up accidentally staying at less than seventy percent of capability and thus don't trigger an ME crash. It's impossible to tell without about fifteen thousand similarly afflicted Rodents and a million pounds. Whatever it is, I am lboody grateful.

Today I finally managed to attend a pain clinic after missing the first appointment by turning up on the wrong day. This time it was the right day, although by the end of the two hour assessment I couldn't honestly have told you what day it was without looking at my calendar. The calendar is one of the few Flylady items, I've tried that actually works for me, and this is only after years of slowly adapting the system to my own needs. The main reason the calendar works is because there's no picture and so you end up with two A3 sized pieces of paper for every month.

What I have been told is that after taking no painkillers at all between July 17 2007 and November 17 2007, the headaches are not rebound and I can take whatever kills the pain while the pain clinic teaches me new methods to relax and cope. I'm all for the relaxation, since I think I need it. I don't need the added psychological barrier of being afraid to go out because it will hurt, and that is already beginning to happen. When I explained this, though, I got no feedback at all about whether this was something they did or not. It was very much a talking to blank walls exercise. I could have used their not carefully explaining that they don't offer miracles, since I am feeling crushed and hopeless enough as it is. I'm not expecting to be pain free, or drug free, but it would be nice to be in a better mental place. They kept asking me what I thought they could offer me, and I don't know what they can. Relaxation techniques, CBT, tea and biscuits, who knows? I felt horribly like I was sitting an oral exam I hadn't studied for.

I told them fairly honestly what I use to help the pain: two times 8/500 cocodamol two or three times a day, sometimes four, sometimes none. Tramadol if I need my wits about me for any length of time. Alcohol as an occasional alternative when I want to go out with friends (the Solstice was very boozy). Headbutting a wall during the really bad ones.
I forgot to mention super-sour sweets, cinnamon sweets and ice cream, all of which help the pain by giving me a few seconds respite/distraction.

I am thinking I need a non-junkie style way to explain to my migraine doc that when I was on thirty or so tramadol per month I was unhappy and unable to work but able to learn Spanish, travel to Spain, find my own accommodation and keep up my hobbies, while without them I am struggling with getting to the corner shop and back again. Either my brain has deteriorated very swiftly since 2007 and I am in serious trouble (and livejournal entries then and now suggest not), or my mental health has just become that bad for some reason (that's harder to ascertain), or strong pain relief really does help me get it together. I need to get that all out verbally without resorting at any point to screaming GIVE ME DRUGS!! because that won't help my case. Unfortunately, while I can type this out fairly calmly, once I'm talking to a doc I can hear the brain cells dribbling away until I am snivelling about wanting more tramadol because it makes me feel better....

It might even actually be better to be a drug-free zombie and not get habituated, although experience really, really says I need something. I really wanted a doc at the pain clinic I could talk this sort of thing over with, and I didn't get it. I'll be going to a GP I probably haven't seen before and asking for tramadol after a looooooooong gap without them, so I want to do it with backing. For this reason, I have an appointment to phone my doc at the London Migraine Clinic on Friday morning. I'll take her advice as regard tramadol. Cocodamol too, since, although it's available OTC, I still don't want to make things worse.

I am working on my own strategies for being unable to think all day. I do ten pieces of housework every day, or at least make a gesture in their direction, and mark them done (or not done) on a whiteboard. They're beginning to slowly be things I do without having to think about them. In particular, it's been natural now for months to wash up as I wait for the kettle to boil for my first cuppa, but it's now becoming second nature to also grab the no-taint kitchen spray and a square of Bounty cloth and wipe the kitchen surfaces and visible spots down. While I eat breakfast, the kitchen is spotless. This is so much not the case for the rest of the day. Wiping the bathroom and brushing the loo are also becoming less things I think about and more things I do naturally, and so those might also come off the list-of-ten-things. I can then add new things onto the list. At the current rate, with current levels of gaga, I could be fairly self sufficient and possibly working at something very simple in three to five years.

For depression, actually, not having to think what to do next is a huge bonus. It's been helping me deal with those February blues, stopping the vicious circle of lack of arsedness--->mess--->being overwhelmed--->depression--->lack of arsedness. If I get a huge relapse or merely hit my limit in the future, I will still try to keep my morning routine going just for the lack of stress it engenders.

Since feeding the cat and emptying her tray are on the list, Moth thinks it's a very good thing. She will come and get me if her cat tray is too full for her comfort, after spreading litter and poo about, so it's good for both of us if it's emptied regularly.

Pol and I had our usual Huge Row about the fact that he really wants to live in a caravan and I really can't cope with it even though the idea itself appeals. The last time we had this row, he threw me out just before I walked out, then he bought me coffee about a minute later and we got very vommish while addressing the very real concern I had over getting so little sleep each night. We left the caravan and moved to this house soon after. This time, we just sat and talked it through for a while, then went and watched the first episode of Stargate SG1 together. Like the fact that I want a dog, the fact that he likes living in a caravan is going to keep on and keep on coming up in the future, so I'll be looking for some way forward to that dream. Perhaps he'll start sleeping eight hours a night. Either that or I can live in a second caravan. One full of dogs. Smelly dogs.

In which the Rodent eats far too few vegetables.

I've been out yet again! The cold snap has gone. Pol and I walked in the rain down to the closer postbox. There was a tree next to it, covered in flowers and a road safety poster for some poor road victim. After that we went to the sandwich shop for bin lids. I had steak Canadien (mechanically recovered meat) with mushrooms and onions, and a cup of pea and ham soup. Three portions of veg for breakfast if you don't mind them being half the recommended size.

Pol told me the powers that be have upped the ante to seven fruit and veg a day. Given their recommended portion sizes (three whole sticks of celery or one dessert bowl of salad is one portion) does anyone actually eat that? A soup made from three sticks of celery, two carrots, a turnip, one bowl of cabbage, two cups of whole grain, two small onions and one and a half cups of mushrooms would feed me for two days, but add that to a bowl of shredded wheat and a glass of orange juice, and it's government recommended intake. Actually, I should try that one day, just to see if I can eat that much.

The walk hasn't hurt me at all and I've done my ten things as well. I hit the cocodamol heavily yesterday, since I had Claire over to play cards. Three doses in the day. Today migraines haven't bothered me until just now and it's 2pm and the pain has kicked in at a lowly four. I'll eat the lunch I cooked but forgot about and see if it helps before I take drugs today. I've finished watching Scrubs now, all the five series I own. It was great fun and now it's over.

In which the Rodent contemplates a sunset in the Pennines.

It's been another bright and sunny day. I've been out twice, once with sunglasses and once without. I ended up taking cocodamol twice today. The pain got all the way up to seven, and yet an hour later I feel pretty good. It spikes up to seven and then fades back to an ignorable three.

Yesterday we went out shopping. It wasn't so much of an ordeal as I remember it being. I found a nice picture for Anne. We went part of the way to Nottingham to deliver it, then Pol got tired and we turned back, just in time to spend a long time in a queue behind a very unpleasant smash on the M62. We could see all the lights clustered about half a mile away. We were in the Pennines and spent a while contemplating some stunning scenery in between being freezing. I had a migraine but no pills, but even through the sunglasses and pain it was very pretty indeed. The sun was lighting everything dark orange to the west, sending black shadows to the east, while frost painted the ground to the north of stands of trees.

It's been another bright and sunny day. I've been out twice, once with sunglasses and once without. I ended up taking cocodamol twice today. The pain got all the way up to seven, and yet an hour later I feel pretty good. It spikes up to seven and then fades back to an ignorable three.

Yesterday we went out shopping. It wasn't so much of an ordeal as I remember it being. I found a nice picture for Anne. We went part of the way to Nottingham to deliver it, then Pol got tired and we turned back, just in time to spend a long time in a queue behind a very unpleasant smash on the M62. We could see all the lights clustered about half a mile away. We were in the Pennines and spent a while contemplating some stunning scenery in between being freezing. I had a migraine but no pills, but even through the sunglasses and pain it was very pretty indeed.

In which the Rodent makes good and is rewarded by a nice room.

I know I seem to spend my time letting things fall where they may, letting the house achieve a state of squalor and then cleaning it all up again, but I am still very pleased with the last two days.

Yesterday was a lazy day. Since I have this routine and want to do things every day, I am careful, especially after a weekend like this has been, to take a day now and then to just be a lazy slob. That said, my slobbishness only came to the fore after I had looked after the cat, washed every dirty pot and tried (and failed) to bake a supply of oat and rice breakfast bars. I let them overcook and they became bricks, but the batch I took a little too early were very edible, so I know now to leave them in for less time and not to try to melt brown sugar onto the top without a blowtorch or risking a saucepan.

Today was making up for a lack of earlier attention to my room. I always know I have been neglecting my main haven when I am reluctant to put out my posh embroidered bedspread in case it gets smelly or dirty.
I dragged myself out of bed promising myself I would do my 'ten things' daily list. The list is: feed the cat, water her tray of grass, brush the floors downstairs, wipe the kitchen (with implicit washing up beforehand), wipe the bathroom down, brush the loo, check the cat tray (with implicit leaving it empty), check the kitchen bin (and empty if full, or just wipe if not), mark Not Known At This Address for post and putting it in the red bag and change the hand towel in the bathroom for a fresh one. I usually get 6 out of 10 even on a lazy day.

Today my aim was to do all ten before I let myself watch more Scrubs. Somehow, in addition, I've put laundry on to wash and dry, tidied away some camera pieces into a bag, tidied all the rubbish in my room, sorted out, decluttered and wiped the bathroom stand, cleaned the bathroom floor, made my bed from scratch (old bedding is in the dryer right now), played madly with Moth who it turns out likes to kill dressing gown cord (I think it incites carrier bags into uprisings or something), emptied the bathroom bin, put clean clothes away (washed and dried at the weekend) and put out a joss stick (downstairs) and the oil burner (my room).

I've yet to get washed and dressed or sort out dinner for tonight, so my room is getting attention but I am not. I can feel a major migraine building. I woke up headachey, but it got better, and this is my first major migraine of the day, at 3pm after an 8am start. The pain's only at a 4, making doing things a drag but not badly, but I want to try, just for once, to head it off at the pass. If I had less migraine, I would do a little piece of sewing, but I don't, so I won't. It's enough that my floor is clear and my room smells good.

In which the Rodent plants bulbs and plays the flute.

I don't know whether this is my fourth or fifth lesson. I'd practised, but I am just not getting those eight-count blasts of noise, so that is my homework. Bizarrely, I can't read notes right after the rest, at least not when migrainous. The rest turns into an extra line or even two, and it makes it difficult to read the note straight after, especially if it's a minim. The solution turns out to be pencilling in a vertical line after the break to halt the bleeding of one mark into another.

This problem solved, we played on and I turned out to be spectacularly inept at C. This, alas, I cannot blame on my migraines. Sometimes I just am bad at something. :0) I have to be able to produce C easily too. If it's for 8 counts, this will be a bonus. Alex aims for one note per lesson and I am falling behind. I am still enjoying it. The tunes I produce may not be exciting, but they're tunes and I am sight reading them.

Since it was a nice day, I finally planted the bulbs I bought just after the January New Year. Then I rested and ate before my friend arrived. She helped me with the DLA forms, which have long ago run past their deadline because I've had no one to help me with the forms. This need for help was starkly realised within a page or two - left alone, I would have given up. As it is, I need to find a dozen pieces of paper and I am not sure I can. One page where everything was a stark YES I need help was communication. To those reading this blog, this might seem odd, but it's true. I avoid letters, forms and telephones because they hurt. Without Pol to pay the bills, I'd be sunk.

In between this, I fed her on wild boar sausages, steamed broccoli (florets and thin slices from the stem), raw carrots cut into matchsticks and thin slices of celery in crescents, with ketjap manis in a tiny little shot glass as a dip bowl.

The headache started waxing at about the time I sat down with the forms, lunchtime, which is amazingly late in the day for me. Usually I've had at least one by the time I have been up a few hours. As it is, the same headache is now pounding away at my head six hours later, which is all par for the course. I took cocodamol when it hit. I resisted taking it again just now, but I think actually I should if I am convinced that many painkillers mean fewer migraines in the long run. I have just trained myself to put up with the pain.

In which the Rodent has a productive and not too painful day.

This morning has been quietly productive. Yesterday was very much a day of leaving things where they fall, which will very, very quickly reduce a house to squalor.

It's amazing how much more active I am every time I refill the house with fresh vegetables. I had a mild migraine all day, say about a 2 since it wasn't bothering me unless I rolled my eyes or shook my head. Towards the evening, I got snappy and miserable and kept rowing with Pol over stupid thing. I finally realised I was in pain at 7ish levels, so I've had cocodamol and I am less miserable and also less in pain.

In which the Rodent eats steamed buns and watches Reaper with friends.

Happy New Year for Friday, to those it affects.

I woke up and came downstairs as usual, but Pol came back from work just as I was waking up. I hadn't realised just how much I needed that first groggy hour of watching inane drivel on telly. As a result, I ended up on edge and snappy while he was trying to unwrap his new purchases.

Pol unpacked various things and when Rob, Angela and Claire came round, Rob helped him take it up. He gave me a box of good acrylic paints, shiny! Very shiny when some of them are Windsor and Newton. Big tubes, too. These will get used. Painting is very hard for me to do now, since my head has to be tilted forward and it takes a level of concentration and detailed vision in good light.

We talked about Chinese restaurants, about how irrational jealousy can make people very isolated, played Identify the Steamed Bun and flux and watched Reaper on E4 for buggy goodness.

Now I am tired and headachey and very, very happy. Being in pain didn't stop me having a good time. I do want drugs though, so I'll get some more after typing this up, making two doses of cocodamol for today. My pain level is at a nice, solid thumping 6, heading toward the 7 where I stop enjoying myself, and I want to be able to keep this sense of having had a good time. When it gets to 7, I literally can't enjoy anything, although I still function.

In which the Rodent has a lazy Sunday alone.

(Start Game Stuff)
The party now works as a team and Kevin keeps us all keyed up for the full ten hours or so we're there, which is not bad going. The party feels very settled now. I like the feeling that my cleric is valuable. I was trying spells with her I hadn't tried before, and buffing up other PCs, and it was all working. We got through a harrowing fight in time to not die, although we lost a horse, and then, having more or less shrugged off this near-death experience thinking a few drinks and a good night's sleep would solve it, our party wandered into a bureaucracy. Fill in form P235B to get a new horse... My cleric is pretty much incapacitated by the lawfulness of it all.
(End Game Stuff)

So, I rolled in at about 1am, with the painkillers worn off, having had a great game with good snacks. Apparently I left my keys in the front door, since someone had posted them back through the letter box when I woke up. Did I mention that I am not very with it when migrainous? Things like dropping things repeatedly and leaving the house insecure get me down.

Moth was very pleased to see me. After a while slumped on the sofa, I ended up running around after her, with her galloping about being Wildebeest, tail up. She loves the spare room being so open and empty, since it makes a great playground for her. I still have books to sort through and I will.

I didn't wake up at all until about 5pm or so. I was vaguely aware that Moth came and tried to rouse me at various points, but I just turned over and went straight back to sleep. It was wonderful.

So, the day after being exhausted, I set about my own routine of television and housework. I'm all washed and dressed. I have put laundry on and it's now drying. Pol's clean clothes have been put away. I've fed Moth, cleaned out the kitchen bin and replaced the bag, watered the cat grass (Moth has stopped throwing up since we got her cat grass), eaten sausages and green peas (yay vegetables!), wiped the kitchen and the bathroom, cleaned the loo, replaced the hand towel and taken the rubbish out of my room.

I've taken cocodamol, despite my pain levels only being five or six, because I want to go Outside and get more gas and electricity before they run out, and I am hurting enough that I am avoiding bending down or going out. It's not so much the pain that's always a problem, as the avoiding doing things because they'll hurt and make me throw up. If it was one migraine a week, fine, but I can't avoid everything forever. So, I've taken drugs. Yay drugs.

There's a move made to provide evening and weekend GP cover in Scotland which matters to me, because I want the same sort of provision down here. Pol really ought to be seeing a doctor for his low mood, but can't because he's working in Solihull and can't see a GP there, and they're all closed during the day. He can't apparently afford to take time off to get this all sorted out.

I get upset that Pol's apparently in a good job and is always acting as though we're only just scraping by. He snaps about money and working long hours, and yet he will buy a holiday in Sicily for us both without a second thought. I can't ever get him to tell me what's going on without first blustering, talking at me at length and then losing his temper when I don't immediately grasp things. I know he's obfuscating, but I can't work out how to sort out what is coming in (never enough) and what's going out (always too much) and how we can be too broke to do sensible things but have enough to splash out. Even seeing the bank statements doesn't clarify things.

I've put together a menu for the week, to see what vegetables I want to buy from the butcher. The winter menu is different to the summer menu, because I buy locally. It's nice.

In which the Rodent takes drugs.

So, I've gone back to just taking painkillers, mostly Happy Fun Cocodamol (i.e. the fizzy 8/500s) whenever I feel blech due to pain without worrying about taking too many or rebound headaches. This is working out to be about once or twice a day, generally in the evening.

The end result seems to be that my migraines are calming back down again. I no longer actively dread any task that will mean having to bend forward. I've seen to the cat tray two days in a row now. I did online shopping, which I haven't done for ages because I couldn't focus long enough to work through it all. If I take painkillers, I seem to be in less pain, even after the painkillers have worn off. Avoiding painkillers left me in a lot of pain and unable to function.

Now, how to articulate this for the pain clinic people...

Today's food is veal. Since it's possible now to get high-welfare veal raised in the UK in reasonable living conditions, I got some from Odaco. I made it into burgers, using wholemeal breadcrumbs made by folding past-its-best bread into a lump and grating it, about a third the volume of bread to meat, two eggs, a good-sized double-handful of veal and enough ketjap manis (a thick, sticky, sweetish soy sauce) to be able to taste the difference. It was nice, cooked until done in the Foreman grill. I had it with cajun sweetcorn fritters.

In which the Rodent contemplates its own nails.

My nail beds grow to a point, extending invisibly under the white of the nail in a thin overhang of sensitive quick. Because of this, I eventually discovered that the best way to cut my nails was to a point, claw-like, following the shape of the nail bed in a Gothic arch. Moth looooooooves my nails when they are freshly sharpened and has been getting happily stoned on the action of rubbing her chin on the points. It made it very hard to get up from the sofa and get moving. The purring. My gods, the purring!

Moving around this afternoon made me contrast it with the recent patch of depression. Instead of it taking five hours to get moving at all, I was downstairs and scrubbing dishes in less than an hour from blearily looking at the clock. I've cleaned a patch of goodness knows what from around Moth's feeding station, wiped the kitchen, sorted out the day's post, put a hook in the door for Pol's keys so I can hang up my 'to be returned' post bag too, had breakfast (with real coffee), examined the lawnmower and the new blade (must ring Tim at fiveish to ask for correct sized spanner to borrow), moved Pol's grandad's coffee table to my room to use as a computer stand at the end of the bed, taken books downstairs, cleared the coffee table (and filled it again), checked the kitchen bin and had time to watch telly too. I was awake at 1:26pm and it's now 2:54pm.

The readiness to go is down to lack of depression, which saps the will to get moving or to stop one thing and move to another. It's an ongoing state of forever. The ability to move without much pain I am putting down to a judicious glass of Happy Fun Cocodamol before going to sleep. Current pain is about a three or four. I am aware of it without having to concentrate on it, but it's not stopping me from doing anything.

Just now, I am procrastinating getting washed and dressed and finding my return prescription to take to the doc. I am nearly out of beta blockers. I have enough Happy Fun Cocodamol to withstand a siege and I am not going to be shy about using it this week, since going without narcotics has been doing me no good at all.